I have to cook every meal and every snack from scratch, and often I cook multiple dinners to accommodate different dietary needs. The planning, shopping, cooking and washing up afterward takes up a good portion of my time and my energy. So when my daughter is begging to go to a park, or to the swimming pool I almost always say no.
It is hard, but it again is the reality of our situation right now and is not something I should feel guilt over. Let it go and ask for help. As a self-proclaimed perfectionist letting things go is the hardest thing I have to do.
I have a friend who has come over to help me fold laundry. But then I realized that that is why I have a community of friends and family. We are here to support each other ,and when help is offered accepting with gratitude and graciousness is OK. The most guilt consuming thing you can do is compare your situation with the situation of another family. I went to an activity for my church where several moms were presenting ideas on what to do with your kids in the summer time.
Five minutes in I started bathing in that mom guilt again. When I got home I felt like crying because I just knew my kids were getting an activity deficient childhood. And then I had a thought — I love my children fiercely. At the end of the day that love is what your children are going to carry with them through adulthood. They will remember less the specifics and more that all those things we did for them through pain and tears and illness meant that we loved them.
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No, thank you. The document should contain a brief medical history, a list of medications or procedures required during the school day and a list of dietary needs or other special precautions. Also critical in helping a child feel normal during a chronic illness is maintaining social ties with friends and family. If possible, this may involve following normal routines even with the chronic illness, or having friends visit in the hospital. Some patients use FaceTime or Skype to communicate with friends or classmates.
Many children are frightened and confused when a friend has a chronic illness. Some of the signs and symptoms to look for include a lingering bad mood, anger, withdrawal from friends and family, or even talk of suicide.
Parenting Children with Health Issues | Love and Logic®
A variety of treatment options are available. Although religion and other forms of spirituality are usually seen as more important to adults with a chronic illness, they can be helpful for children, too. Thinking about the spiritual side of illness, for instance, may help a child rationalize what is happening to him or her.
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For example, a child may feel he or she is being punished for some past misbehavior, or he or she may wonder why a higher power would allow this to happen. In these situations, reassure your child as best you can.
Make the Hospital Feel like Home
Sometimes, children wonder why they have an illness. We encourage patients to think about how they can help themselves feel better, rather than focusing on why. Chronic illness can be extremely difficult for both parents and children to handle on their own. Growing up is tough enough for teens and young adults, but living with a chronic disease adds even more complications.
Listen to the podcast about living with a chronic illness. Coping with Chronic Illness.
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- Extreme Parenting: Parenting Your Child with a Chronic Illness by Sharon Dempsey!
- Resources for Supporting Families Coping with Chronic Illness?
- Resources - Loss and Grief - Loss of health - Coping with chronic illness - Skylight Trust?
Help Your Child Understand To help your child cope and manage stress, encourage him or her to express their feelings. Provide Options and Independence After a child is diagnosed with a chronic illness, he or she may face a barrage of hospital visits, tests, procedures and other obligations.
Keep Friends Close Also critical in helping a child feel normal during a chronic illness is maintaining social ties with friends and family. Follow a Spiritual Path Although religion and other forms of spirituality are usually seen as more important to adults with a chronic illness, they can be helpful for children, too.
Seek Help if Needed Chronic illness can be extremely difficult for both parents and children to handle on their own.